Youth with Physical Disabilities

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Relationships & Sexuality References & Resources (for young adults 16+)

Developed by Susan Labhard, MSN, RN Transitions Nurse Specialist, Shriners Hospital for Children

Youth with Physical Disabilities
Basso, M.J. (2003). The Underground Guide to Teenage Sexuality (2nd Edition). Minneapolis, MN: Fairview Press. ISBN 978-1-57749-131-6
Ducharme, S.H., & Gill, K.M. (1997). Sexuality After Spinal Cord Injury: Answers to Your Questions. Baltimore, MD: Paul H. Brookes Publishing Co., Inc. ISBN 1-55766-265-7
Gray, J. (1992). Men are from Mars, Women are from Venus. New York, NY: Harper Collins Publishers, Inc. ISBN 0-06-016848-X
Haseltine, F.P., Cole, S.S., Gray, D.B. (1993). Reproductive Issues for Persons with Physical Disabilities. Baltimore, MD: Paul H. Brookes Publishing Co. ISBN 1-55766-111-1
Kaufman, M., Silverberg, C., Odette, F. (2007). The Ultimate Guide to Sex & Disability: For All of Us Who Live with Disabilities, Chronic Back Pain & Illness. San Francisco, CA: Cleis Press. ISBN 13:978-1573441766
Kriegsman, K., Zaslow, E., D'Zmura-Rechsteiner, J. (1992). Taking Charge: Teenager Talk About Life & Physical Disabilities. Woodbine House, Inc. ISBN 0-933149-46-8
Kroll, K., & Klein, E. (2001). Enabling Romance: A Guide to Love, Sex, and Relationships for People with Disabilities (and the People who Care About Them). No Limits Communications, P.O. Box 220, Horsham, PA 19044. ISBN 0-9712842-0-2
Krotoski, D.M., Nosek, M.A., & Turk, M.A. (1996). Women with Physical Disabilities. Baltimore, MD: Paul H. Brookes Publishing Co., Inc. ISBN 1-55766-234-7
Labhard, S., Laird, C., Linroth, R., O'Connor, R.C., Jones, J., & Jones, G., Peterson, P., Stigall, C. (2010). Sexuality and Spina Bilida. Washington, DC: Spina Bifida Association. ) (1-800) 621-3141
Ludwig, S., & Hingsburger, D. (1993). Being Sexual: An Illustrated Series on Sexuality and Relationships­ Teaching Manual (Number 17). Toronto, Ontario, Canada: SIECCAN.
Macavinta, C. & Pluym, A.V. (2005). Respect: A Girl's Guide to Getting Respect & Dealing When Your Line is Crossed. Minneapolis, MN: Free Spirit Publishing Inc. ISBN 1-57542-177-I
Schover, L.R. (1997). Sexuality and Fertility After Cancer. New York: John Wiley & Sons, Inc. ISBN 0-471-18194-3
Stanley, D.A. (2003). Sexual Health Information for Teens. Detroit, MI: Omnigraphics, Inc. ISBN 0-7808-0445-7

Youth with developmental, Intellectual &.or Physical Disabilities
Allen, John D. (2003). Gay, Lesbian, Bisexual, and Transgender People with Developmental Disabilities and Mental Retardation. Binghamton, NY: Harrington Park Press. ISBN 1-56023-396-6
Baker, J. (2006). The Social Skills Picture Book for High School and Beyond. Arlington, TX: Future Horizons, Inc. ISBN 10: 1-932565-35-3. Phone: (1-800) 489-0727
Couwenhoven, T. (2007). Teaching Children with Down Svndrome about Their Bodies, Boundaries, and Sexuality. Bethesda, MD: Woodbine House, Inc. ISBN 978-189062733-1
Drury, J., Hutchinson, L., & Wright, J. (2000). Holding On, Letting Go: Sex, Sexuality and People with Learning Disabilities. London, England: Souvenir Press Ltd, ISBN 0285-63578-6
Duke, M., Nowicki, Jr. S. & Martin, E. (1996). Teaching Your Child the Language of Social Success. Atlanta, GA: Peachtree Publishers, LTD. ISBN 1-56145-126-6
Dunn, J. (2004). Children's Friendships: The Beginnings of Intimacy. Malden, MA: Blackwell Publishing. ISBN 1-4051-1448-7
Elman, N.M. & Kennedy-Moore, E. (2003). The Unwritten Rules of Friendship: Simple Strategies to Help Your Child Make Friends. Boston, MA: Little, Brown & Co. ISBN 0-316-91730-3
Frankel, F. (1996). Good Friends are Hard to Find: Help Your Child Find, Make and Keep Friends. Los Angeles, CA: Perspective Publishing. ISBN 0-9622036-7-X
Griffiths, D., Quinsey, V. & Hingsburger, D. (1989). Changing Inappropriate Sexual Behavior: A Community­ Based Approach for Persons with Developmental Disabilities. Baltimore: P.H. Brookes Publishing Co. ISBN 1557660093
Henault, I. (2006). Asperger's Syndrome and Sexuality. Philadelphia, PA: Jessica Kingsley Publishers. ISBN 1-84310-189-0
Hendrickx, S. (2008). Love, Sex & Long-Term Relationships: What People with Asperger Syndrome Really Really Want. Philadelphia, PA: Jessica Kingsley Publishers. 987-1-84310-605-0
Hingsburger, D. (1998). Do? Be? Do? What to Teach & How to Teach People with Developmental Disabilities. Richmond Hill, Ontario, Canada: Diverse City Press Inc. ISBN 1-896230-10-5
Hingsburger, D. (1990). i to I. Self-Concept & People with Developmental Disabilities. Mountville, PA: VIDA Publishing.
Hingsburger, D. (1995). Just Say Know! Richmond Hill, Ontario, Canada: Diverse City Press Inc. ISBN J-896230-00-8
Kriegsman, K., Zaslow, E., D'Zmura-Rechsteiner, J. (1992). Taking Charge: Teenagers Talk About Life & Physical Disabilities. Woodbine House, Inc. ISBN 0-933149-46-8
Lavoie, R. (2005). It's So Much Work to Be Your Friend. New York, NY: Simon & Schuster. ISBN-13: 978-0-7432-5463-2
Lawson, W. (2005). Sex, Sexuality and the Autism Spectrum. Philadelphia, PA: Jessica Kingsley Publishers. ISBN 1-84310-284-6
Meadours, J. (2006). Healthy Relationships and Safe Sex. (Available from Human Services Research Ins!, 7420 SW Bridgeport Rd., Suite #210; Portland, OR 97224). Phone: (503) 924-3783 x10
Michelle, L. (1995). How Kids Make Friends. Buffalo Grove, IL: Freedom Publishing Co. ISBN 0-9638152-1-0
Moss, K. & Blaha, R. (2001). Introduction to Sexuality Education for Individuals Who Are Deaf-Blind and Significantly Developmentally Delayed. (From DB-Link, 345 N. Monmouth Ave., Monmouth, OR 97361).
Newport, J. & Newport, M. (2002). Autism-Asperger's & Sexuality: Puberty and Beyond. Arlington, TX; Future Horizons, Inc. ISBN 1-885-477880. Toll-free: 1-800-489-0727
Nowicki, Jr. S. & Duke, M.P. (1999). Helping the Child Who Doesn't Fit ln. Atlanta, GA: Peachtree Publishers, Ltd. ISBN 1-56145-025-1
Ramey, E.M. & Ramey J.J. (2008). Autistics' Guide to Dating. Philadelphia, PA: Thomson-Shore, Inc. ISBN 978-1-84310-881-8
Rubin, K.H. (2003). The Friendship Factor. New York, NY: Penguin Putnam Inc. ISBN 0-14-200189-9
Schwier, K.M., & Hingsburger, D. (2000). Sexuality: Your Sons and Daughters with Intellectual Disabilities. Baltimore, MD: Paul H. Brookes Publishing Co., Inc. ISBN 1-55766-428-5
Strong, Safe & Free Curriculum for Teaching Safe Interaction & Healthy Relationships along with Self-Defense for Adults with Developmental Disabilities. Contact Elly Maloney, Self-Defense Program Coordinator, Sexual Assault Support Services. Phone: (541) 484-9791 x319 or self-defense (
Walker-Hirsch, L. (2007). The Facts of Life...and More. Baltimore, MD: Paul H. Brooks Publishing Co. ISBN 13:978-1-55766-714-4

Sexuality Resources
AIDS Hotline: (1-800) CDC-INFO or (1-800) 232-4636 (Resource for questions related to HIV & AIDS prevention).
American Association of Sexuality Educators, Counselors, and Therapists (AASECT): P.O. Box 1960, Ashland, VA 23005-1960. Phone: (804) 752-0026. (lists counselors by state or country---and info on gay, transgender issues, etc.).
Condom Resources/Information: www.condomavc.corT);
Good Vibrations: 1210 Valencia Street, San Francisco, CA 94110. Phone: 1-800-289-8423 (e-mail:

www.goodvibes.cgm}. "Retail store & sex product catalog with a classy touch" per: Kroll & Klein.

Int’l Professional Surrogates Association: http://sunoga. 12National Child Abuse Hotline: Phone: Child Help: 1-800-4-A-CHILD.
National Coalition to Support Sexuality Education (NCSSE). c/o SIECUS, 1706 R Street, NW, Washington, DC 20009. Phone (202) 265-2405.
National Dissemination Center for Children with Disabilities (NICHCY). Box 1492, Washington, DC 20013. Phone 1-800-695-0285.
National Sexual Assault Hotline: Phone: 1-800-656-HOPE.
National Spinal Cord Injury Association: 245 Concord Avenue, Suite 29, Cambridge, MA 02138.

Phone: 617-441-8500.

National Spinal Cord Injury Hotline: 2201 Argonne Drive, Baltimore, MD 21218. Phone: 1-800-526-3456.
New Mobility: No Limits Communications, P.O. Box 220, Horsham, PA 19044. Phone: 1-888-850-0344 (e-mail: Information on disability lifestyle, culture & resources (i.e., bimonthly column on sexuality and the magazine's annual "Sex, Wheels & Relationships" issue). Contact the New Mobility Bookstore for Sexuality After Spinal Cord Injury and Women With Physical Disabilities plus other references on sexuality. Phone: 1-800-543-4116. ??Questions??: Send to "Love Bites" section.
Parent Advocacy Coalition for Educational Rights (PACER Center, Inc.): 8161 Normandale Blvd., Minneapolis, MN 55437. Phone: (952) 838-9000.
Planned Parenthood: Nat'! Headquarters, 810 7'h Avenue, New York, NY 10019. Phone: 1-800-829-7732 or 1-800-230-PLAN (Local Info. consult the Telephone Directory "Business" section).
Puberty Education for Students with Special Needs (A Girl's/Bov's Guide to Growing Up & A Girl's/Boy's Guide to Pubertv and Personal Safety): Available from MarshMedia (1-800-821-3303) or

Sex Information and Education Counsel of the United States (SIECUS): 130 West 42nd Street, Suite 350, New York, New York 10036-7802. Phone (212) 819-9770.

Sexual Health Network, Inc.:
Sexuality Education for Adults with Developmental Disabilities: Planned Parenthood of Northern New England and Green Mountain Self-Advocates. By: K. McLaughlin, K. Topper, & J. Lindert. Order: Phone (1-800) 488-9638. If interested in being trained on how to use this curriculum or another topic related to sexuality and disabilities, you can contact Katherine McLaughlin at 603-352-0934 or katherin@ppnne.m:g
Spina Bifida Association of America: 4590 Mac Arthur Boulevard NW, Suite 250, Washington, DC 20007- 4226. Phone: 1-800-621-3141. Preparations: Becoming an Adult Living Successfully with Spina Bifida http://www.sbpreparation
Spinal Network. Nine Lives Press, P.O. Box 220, Horsham, PA 19044. Toll Free (1-888) 850-0344, ext. 109 (Fax 215-675-9376). ISBN 0-9715223-0-8
Strong, Safe & Free Curriculum for Teaching Safe Interaction & Healthy Relationships along with Self-Defense for Adults with Developmental Disabilities. Contact Elly Maloney, Self-Defense Program Coordinator, Sexual Assault Support Services. Phone: (541) 484-9791 x319 or
The Disability Rag: Avocado Press, Box 145, Louisville, KY 40201. Phone: (502) 459-5343.

Wiegerink, D. (201 0).

Romantic Relationships & Sexual Experiences of Adolescents and Young Adults with Cerebral Palsy. Erasmus University, Optima grafische Communicatie, Rotterdam, The Netherlands. ISBN 978-90-



Doin’ It & Beyond Disability: The Fe Fe Stories: Sex, Disability, Videotape (Video/DVD)

Gaby, A True Story: Movie about young woman with cerebral palsy.
I am A Beautiful Person-Sexuality & Me: Video for Parents of Teens with Disabilities. Pacer Center, Inc. (952) 838-9000 or
No! How!!: Film by people with disabilities aimed at others with disabilities-discussing disability, teaching boundaries & body parts. Diverse City Press, Inc.
Puberty Education for Students with Special Needs: A Girl's/Boy's Guide to Growing Up & A Girl's/Bov's Guide to Puberty and Personal Safety-Available from MarshMedia (1-800-821-3303) or
(Sex)abled: Disability Uncensored-URL: Available from:'lcmd= s-xclick&hosted button id=9377362 or contact Ama.Hoff
Sex, Lies & The Truth: Focus on the Family Films about Relationships and STD's.
Take Care Down There: Video Clips for Young Adults on STD's from Planned Parenthood. www. takecaredownthere.olJi
The Ethics of Touch: Establishing & Maintaining appropriate boundaries in service to people with developmental disabilities. Diverse City Press, Inc. ISBN 1-896230-12-1
The Whole Truth: An abuse Prevention Programme for People with Intellectual Disabilities. (Booklet & DVD). Diverse City Press Inc. ISBN 1-896230-29-6
Under Cover Dick: Teaching men with disabilities about condom use through understanding--discussion on disease & disease transmission in a concrete way. (Booklet & DVD). Diverse City Press Inc. ISBN 1-896230-04-4 www.diverse­
Young Adult Websites:

Website about internet chat rooms and safety

AbilityOnline-Internet Community:
Disabled Friends Portal:
Like It Is:
Youth Center-Youth Living with Disabilities:
Youthhood-Support for Teens: http:/ /
Dating Websites
**Safety Tip: It is very important to be careful when meeting someone-especially on line! Don't use your personal e-mail or give out your full name, address or phone number or any other personal information until you get to know the person and have checked that they are safe. If you agree to meet, be sure it is with a friend in a public place that you know. Tell somebody where you are going & when you will be back & take your cell phone with you in case of an emergency. No one assumes liability if you pursue these websites-pursue at your own risk.

http://www. dateable. org




http: //www.lovebyrd. com

http: //www.match. com/

Updated 9/12 Susan Labhard, MSN, RN· Shriners Hospital for Children-Portland, Oregon

**Please notify slabhard@shrinenetorq of any changes to above information

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